Over 30% of the American population is believed to have the genes for celiac disease. 2.5 children are born every minute with these genetics. While signs of celiac disease may vary greatly from person to person, there are certain similarities amongst groups. Digestive issues, for example, are the most common symptoms for infants and young children. Abdominal pain and bloating, vomiting, chronic diarrhea, weight loss, and severe irritability are just a few symptoms for a parent to look for. If you suspect your child may have celiac disease, a wheat allergy, or gluten intolerance, it is important to see a qualified physician for proper testing. There is no cure for celiac disease, and the only treatment is a gluten-free diet. However, by eliminating gluten from your child’s diet, long-term health complications can be avoided.
While having celiac disease requires a change in lifestyle, it does not mean that your child should be excluded from “normal” activities. Encourage your child to accept party invitations; simply call the parents ahead of time, and pack gluten-free snacks or meals as a standard procedure. When he or she reaches school age, it is important to meet the school nurse, district or school dietician, and make connections within the school district. These will be helpful ties in order to find out how the needs of your child might best be met within your district. Finally, if your school cannot adjust for gluten-free meal options, an easy alternative is to consider packing a lunch.
When a child is diagnosed with celiac disease, the entire family often becomes a “celiac family.” Though it is not always possible, it can make the adjustment for the newly diagnosed child easier if the entire family switches to a gluten-free diet. If the main dishes can be the same for everyone, the feeling of being “different” will be removed—at least from the home. This can become a bonding point between the child and the family, as well as an easy way to find favorite gluten-free brands and products. Furthermore, eating-out need not be avoided, or even difficult. Look for restaurants that offer a large menu variety, and staff who are willing to assist with your questions and concerns. Fruits, vegetables, grilled meats, salads, potatoes, and eggs are all great staples at any location. Always make sure to ask how about food preparation, as cross-contamination can become an issue.
Finally, it is critical to teach the child the different aspects of a gluten-free diet. This will vary depending on their age, but it will become increasingly important as the child grows that they understand their own body, digestive system, and how to handle the disease appropriately. Involve your child with label reading as soon as they are old enough to comprehend the process of selecting safe food. Teach them not to accept food from other children unless they are absolutely certain that they are gluten-free.
For additional information, check out Kids with Celiac Disease by Danna Korn for a “Family Guide to Raising Happy, Healthy Gluten-Free Kids.”
Online resources can be found at www.uptodate.com, and Helping the Celiac Child Cope With the Gluten-Free Diet
